Patients Know Best Reviews 

632
TrustScore 3 uit 5

3,2

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Beoordeeld met 1 van de 5 sterren

Patient portal was way better. At least I could actually see results on that. This has nothing. Not even the correct NHS region. Zero medical history - no record of any treatments or consultations.... Toon meer

Beoordeeld met 1 van de 5 sterren

Used to be really useful for monitoring my platelets,I'd find out the same day and be able to adjust my medication accordingly. I don't even get that information anymore. I have to wait a week, even... Toon meer

Beoordeeld met 5 van de 5 sterren

Very helpful support to resolve a problem with logging into the system. My enquiry was dealt with quickly and with a very friendly but professional approach. Thank you.

Beoordeeld met 5 van de 5 sterren

I am very impressed with the time and care that Tara put into solving my log in problems. It took at least five attempts to finally solve the main problem, with lots of patience on her part and I can... Toon meer

Bedrijfsgegevens

  1. Softwarebedrijf

Informatie afkomstig van verschillende externe bronnen

Patients Know Best (PKB) is Europe’s largest personal health record platform, enabling patients and healthcare professionals to access real-time health information - anytime, anywhere. As the world’s first patient-controlled personal health records system, PKB facilitates borderless, integrated care wherever the patient needs it. That means any healthcare provider, whether in another area of the country or another part of the world, can immediately access all the information they need to support improved clinical decision making and the best patient care. Everything from test results, care plans, real-time monitoring data and discharge summaries, to the patient’s own data - either uploaded from their journal, wearable devices or using symptom tracking, are all available in one patient record. This also reduces the need for professionals to request background information from the patient’s regular healthcare team. In 2020, PKB became the first personal health record (PHR) to integrate with England’s national health platform - the NHS App. This extends the NHS App’s current features and sharing of GP data, to allow patients to access PKB’s full health and care record and functionality, direct from the national NHS interface. For more information on the features and benefits of Patients Know Best, visit www.patientsknowbest.com or email enquiries@patientsknowbest.com.


Contactgegevens

3,2

Gemiddeld

TrustScore 3 uit 5

632 reviews

5 sterren
4 sterren
3 sterren
2 sterren
1 ster

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Heeft 54% van zijn negatieve reviews beantwoord

Reageert doorgaans binnen 2 weken

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3,2

Alle reviews

(632)

85 reviews in de afgelopen 12 maanden

Een review schrijven
Bedrijven op Trustpilot mogen geen beloningen aanbieden of betalen om reviews te verbergen. Reviews zijn de meningen van individuele gebruikers en niet van Trustpilot. Meer informatie

Beoordeeld met 5 van de 5 sterren

Failed attempt to register was rescued

My first attempt to register my wife and I ended in failure as I had been trying to use a single email address for us both. I spent several hours trying to cancel and re-enter the system.
I decided to contact the PKB support team and the contact, Jo, was very helpful and sent a series of step by step instructions for each person. All fixed correctly
Excellent service.

5 mei 2026
Review zonder uitnodiging
Beoordeeld met 1 van de 5 sterren

Is it a scam?

Received an email from a random hospital from some distant part of the UK inviting me to register. The email claimed that this random hospital holds my data. It took 3 phone calls to establish that this is not a scam, but an email was sent to me in error. No respect for GDPR rules. This is concerning as they might hold some medical data.

14 april 2026
Review zonder uitnodiging
Logo Patients Know Best

Antwoord van Patients Know Best

Thank you for contacting the hospital and making sure this error is fixed Jo. Patients Know Best is not the party that made the error - Patients Know Best is the party that informed you that the error is happening.

Could you amend your review to reflect this please so other patients also know how to fix the errors they hear about.

Beoordeeld met 1 van de 5 sterren

Complete Shambles

Some time ago I got an invite to sign up and on paper this seemed a good idea. The reality is rather different.
The hospital trust had suggested I join and so I did. Initially there was the occasional update for me to look at but this was just a repeat of the letters I had received for appointments so duplication.
Having been refused a simple blood test by my GP, I suggested the practice look at Patientsknowbest. 'Never heard of it' both the receptionist and the doctor said.
Nothing much changed and every 6 months my test results were uploaded for me to look at. However, I was still getting a telephone appointment AND a letter telling me the same thing.
Checking the information today I find that 4 of the last 5 test results are missing. But no matter, I have letters with the results.
Since October last year I have had a number of other unrelated tests for a potentially serious condition. This has meant visits to two hospitals within the same trust, for x-rays, for bloods, to see a specialist and fitting recording equipment. There is NO RECORD OF ANY OF THIS TREATMENT.
So it seems most of the hospital trust and the GP either couldn't care less about this facility or have no idea it even exists despite the trust being signed up to it.
2026 is the digital age but I have to rely on a large, bulging paper file of documents containing all my medical history. Complete and utter shambles.

10 april 2026
Review zonder uitnodiging
Logo Patients Know Best

Antwoord van Patients Know Best

Dear Mr Wilson, it looks like you have completely understood Patients Know Best - a single place to get all your data, for your health.

Given that (1) the software works for over 6.5 million users and (2) lots or providers release lots of data for example 22 million test results every month… it reads from your review that the problem is with (3) the hospital that is not releasing data about you to you.

Could I ask that you move this review to the hospital that is at fault? It currently reads like the fault of Patients Know Best, and it isn’t. That way the hospital can know what mistake they are making and they can fix this for the next generation of patients, which I know is your intention.

Beoordeeld met 5 van de 5 sterren

Can’t praise it highly enough

Can’t praise it highly enough. I used to have to wait a week to get test results from the doctor, now it’s mostly the same day.
All my info in one place. Had to give details for a life insurance application recently and I found dates and details in the app.
Shows trends of blood results - useful if like me you have tests regularly (diabetic)

4 april 2026
Review zonder uitnodiging
Beoordeeld met 1 van de 5 sterren

Dreadful, time-wasting experience

I knew nothing about this ill-named organisation until I received three messages from it after a medical procedure as an out-patient. I was unable to access those messages, having never heard of Patients Know Best. Then I found the security requirements to register were quite beyond the rather limited IT facilities I had. So three hours of my time down the drain and to no real purpose at all, it seems. Why cannot they simply identify me through my GP practice?

22 maart 2026
Review zonder uitnodiging
Logo Patients Know Best

Antwoord van Patients Know Best

Dear Mr Foot, I’m sorry for the difficulties you are having in accessing information about your health care. The process you are describing is run by the NHS to ensure only you get to access to information in the record about you. I’m sure you can agree that high security is important to protect your privacy. The full list of methods for you to get an NHS login - what your GP relies on - are here:

https://help.login.nhs.uk/

Or you can contact the Patients Know Best team so we can advise you of your local clinical team who can set up your account with you in person:

https://patientsknowbest.com/contact-us/

Beoordeeld met 5 van de 5 sterren

Super response

Super response. MY GP and the hospital staff were unaware of how to fix the problem. Jo at the help desk sorted it immeditaely

20 maart 2026
Review zonder uitnodiging
Beoordeeld met 5 van de 5 sterren

It will be great when all the Health Departments use it

I found this website easy to use and intuitive. I had reason to contact the support team as I somehow ended up with two accounts because I changed my email over the years. The support team responded straight away and resolved the issue. This meant a lot to me knowing someone was there to help and not just an automated bot.
I hope it continues to run but it will only work if all the Health Departments use it. At the moment, I am not seeing all my records. I also know some GPs don’t even know what it is.

19 maart 2026
Review zonder uitnodiging
Beoordeeld met 1 van de 5 sterren

I think it is just a waste of time

I think it is just a waste of time. Another 'app you need'....for nothing. First, you must be an accountant, as the info you add has to be exactly like your tests figure. To most people it looks like calculus, unless you are a doctor.

More disturbingly, in places it says 'doctors might not routinely check here, so contact them directly'.

So what the heck is all that work for? It gives a false sense of comfort, making you believe you are doing a lot, but in fact probably is just a waste of time and effort.

17 maart 2026
Review zonder uitnodiging
Beoordeeld met 5 van de 5 sterren

When I first created my record

When I first created my record, it unfortunately wasn’t connected to a hospital because my trust at the time wasn’t using the service. However, since moving to a new area, I automatically received an email letting me know that my new hospital is now connected to my record.

I’m really happy that this happened automatically, and I’m finally starting to see some of my records. It makes such a difference being able to access this information.

I hope more and more places start using this service, as it’s really beneficial for patients to have easy access to their records.

11 maart 2026
Review zonder uitnodiging
Beoordeeld met 1 van de 5 sterren

Absaloutaly useless

Absaloutaly useless, I get emails saying about my hospital updates, but cannot read them , as they have NOT sent me the invite or access codes, try to contact them and NO response, a normal email straight from the hospital would be better and NOT bother with this waste of time company

18 februari 2026
Review zonder uitnodiging
Beoordeeld met 1 van de 5 sterren

Patient knows best is a waste of space time and money

Patient knows best is a good heading it's a shame that the data site does not keep up. I am fed up with how poor this site is. Appointments made then cancelled with back to back e mails. Appointments that I have cancelled that are then reinstated The amount of confusion worry and stress that this site dishes out is beyond belief. I would like to end my communication with this site and get all my files deleted. Previously you made a telephone call got an date for an appointment put it in your diary/calendar. Turn up for your appointment.
I have been in hospital today for a day patient appointment. Now I have found out that the appointments that I thought I had have been changed back to the previous dates. I feel this is just another way for all the greedy people to ditch the NHS and make it go private. Get all the records by fair means or foul bankrupt the NHS and then contact all those that you have information for. How do I get off the wreck. Why is there no simple way of contacting them?

17 februari 2026
Review zonder uitnodiging
Logo Patients Know Best

Antwoord van Patients Know Best

Sorry this has been a stressful and confusing experience for you Chris.

Your appointments are scheduled and managed by your hospital / care providers. Our platform gives you visibility of information related to your health record, if you choose to use it. You can adjust your notification preferences to reduce certain emails, although we'll always notify you about important updates such as future appointments. This can sometimes mean you see changes or corrections from your hospital team that you might not otherwise have been aware of, but it can also give you the opportunity to spot and raise any discrepancies.

I also want to reassure you that your care providers remain in control of your medical record. The clinical data shared with you via the PKB platform is encrypted, and you are in control of who you share your record with, including the ability to grant or remove access at any time.

If you’d like to stop using your PKB record or request deletion, please email help@patientsknowbest.com or use the contact form on our website, and we’ll start the process.

Best wishes,
Lisa
📧: help@patientsknowbest.com
Patients Know Best

Beoordeeld met 1 van de 5 sterren

There should be a no star option for…

There should be a no star option for this application it is virtually impossible to use causing frustration and stress when a simple email or message from the hospital will suffice.

Thank you for your reply however I still consider this application to be a complete waste of time and money on the part of the NHS. Sadly yet more bureaucratic mismanagement.

9 februari 2026
Review zonder uitnodiging
Logo Patients Know Best

Antwoord van Patients Know Best

Sorry, it sounds like this has been frustrating for you.

If you’re having trouble with your login details or resetting your password, your local PKB team at the hospital can help restore access to your record. If you’re not sure who to contact, please email our support team at help@patientsknowbest.com.

If you’ve linked your record with NHS login (for patients in England and some areas in Wales), you can click the NHS login button on our login page, and sign in using those details instead.

Lisa
📧: help@patientsknowbest.com
Patients Know Best

Beoordeeld met 5 van de 5 sterren

This is the perfect way for all my…

This is the perfect way for all my medical records to be made available to me and the clinical team looking after me. The sooner it is rolled out across the whole of NHS Wales the better for everyone

2 februari 2026
Review zonder uitnodiging
Logo Patients Know Best

Antwoord van Patients Know Best

Thank you for taking the time to share a review 😊

It’s great to hear PKB is helping you and your clinical team. As a Welsh patient myself, I completely agree, it will be fantastic to see it more widely available across Wales 🏴󠁧󠁢󠁷󠁬󠁳󠁿

Best wishes,

Lisa
📧: help@patientsknowbest.com
Patients Know Best

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